Caregiver burden significantly impacts the lives of those who provide care. Given that caregivers play a crucial role in supporting families of seniors and individuals with disabilities, it is essential to understand what caregiver burden entails. This burden is characterized by a perceived decline in quality of life, leading to both physical and psychological challenges.
Long-term caregiving often results in physical deterioration and fatigue (A.A., 2004). The temptation to take on extra hours or cover shifts can be strong, with some caregivers working over 60 hours a week. Unfortunately, many caregivers do not report their own fatigue or health issues.
Research indicates that caregivers frequently experience heightened levels of depression, anger, guilt, and anxiety. This is particularly evident during care of late stages of cancer, where caregivers report significantly higher rates of anxiety and depression compared to the general population. They are also more vulnerable to mental health impairments (J.I., 2011).
These symptoms may signal caregiver burnout, a state that arises when individuals work excessively without prioritizing their own well-being. This is different than caregiver burden. Neglect that takes place during caregiver burden can lead to serious personal consequences, such as feelings of depression and a diminished ability to enjoy previously loved activities.
References
Song J.I., Shin D.W., Choi J.Y., Kang J., Baik Y.J., Mo H. Quality of life and mental health in family caregivers of patients with terminal cancer. Support Care Canc. 2011;19:1519–1526. doi: 10.1007/s00520-010-0977-8.
Thornton A.A., Perez M.A., Meyerowitz B.E. Patient and partner quality of life and psychosocial adjustment following radical prostatectomy. J Clin Psychol Med Settings. 2004;11:15–30. doi: 10.1023/B:JOCS.0000016266.06253.95.